Tuesday, July 28, 2009

Exiled to Canada Because of Healthcare Needs



Stolen from Sherry.

Catching Up

I've been missing in action again. You may not even have noticed, but if you have, I apologize. I'm posting the last two chapters of the novel, Maggy. Then I need to practice writing a query letter. One of the good things about twitter is that there are a bunch of literary agents on twitter; I'm following several of them. And it seems the big hurdle for most writers seeking an agent is learning the art of the query letter. So I'll soon start practicing my query letter writing. Seems to be part pitch, part bio, part appeal to the ego of the agent. I can write a novel, a short story, a poem, but a pitch? We'll see.

Yesterday I had atrial fibrillation and hinky blood pressure. In the past I didn't feel the atrial fibrillation, but yesterday it put me down like an old dog. I was ashen and exhausted, and completely uninspired. It was one more day in a month of extremely high temperatures, so as well as sick, I was limp from the heat. I promised my neighbor that if I woke up today with hinky blood pressure and the stuttering pulse, I'd call my doctor. Well, I seem fine today, but still called my doctor's office to let her know about yesterday's episode. I see her in a couple of weeks anyway. I think the stress of having three girlfriends who are so seriously ill has stressed me to the limit. It's as if I can't bear the fact that I am going to be left alone, alive and very old. Some would say this is better than the alternative, but I'm not so sure. It was always my plan to exit early. Yet here I am older than I ever imagined I'd be.

I'm going to be following the healthcare debate very carefully. I wish to god I were very very rich so I could contribute several million to anyone who could defeat Orin Hatch. That old prissy prick needs to retire. He is as right-wing as one gets, and completely in the pocket of the insurance industry. Harry Reid needs to go too. Harry is about as spineless as they come. I think Harry's problem is that he's a Mormon, and as a Mormon he ought to be a republican. He reminds me of Joey Leiberman. He's straddling the fence of his religious values and his political affiliation and it's giving him a wedgie. So I'd pump some money into bringing down Harry as well. Then there are the "blue dog democrats." I'd start going after them with my discretionary millions. Boy is it fun to dream those kind of dreams. How nice it would be to have the money to influence the outcome of political races. United Healthcare is going to be going full-out to fight the possibility of a public option. Do not let those criminals change the debate. United Healthcare and it's "think tank" the Lewin Group is still rich enough to pour hundreds of millions into fighting a public option. Do not let them influence you. Please write and call your elected representatives to let them know where you stand on the healthcare debate. Sorry if that sounds like a lecture, but this is important. I have medicare, you should too. It's the best medical coverage I ever had, and I used to pay $1,000 a month to United Healthcare for shitty coverage.

Monday, July 27, 2009

My Daily Twitterscope

Others may be quite certain that you are lost in space today -- and they might be right. But it's probably more correct to say that you are detoured, for you really do know where you are and where you are going. You're not, however, aware of how you're going to get there. Don't pay too much heed of anyone who judges you too harshly now. Let your wounds heal on their own schedule. You'll still have time to reach your destination. Get your complete Cosmic Profile

I'm fairly sure there are those who KNOW that I am lost in space everyday, but compared to many of my "sane" friends I am incredibly grounded. Yes, it's probably true that dingbats attract dingbats, but I swear I know some of the nuttiest people who are thought to be completely normal, whereas I am known, especially by myself, to be nuts. I do avoid relationships with other mental patients. I have enough problems with my sane friends. But at least one of my sane friends (Z) has eight, yes, that's 8 friends who are bipolar. That qualifies her for the loony bin to my way of thinking. I have met a couple of her other bipolar friends, and I wouldn't let them in my house if they knocked on my door and asked for a drink of water. Heartless? Maybe. But what is it that would make a fragile woman surround herself with so many people who obviously need help? Yes, some of us can be quite charming for minutes on end, but her other bipolar friends, with the exception of me, are non-compliant bipolar patients who refuse to take their meds and who engage in shrink-shopping--looking for a therapist who will give them a kinder, gentler diagnosis.

Sunday, July 26, 2009

Respect For Authority

I don't have it. The first authorities are always parents. The worse they are, the less likely their spawn will be able to respect authority.

I live as lawlessly as I dare, given that I live in a paternalistic, authoritarian, theocratic state. I live at odds with the culture around me and have learned, usually, to live quietly and as invisibly as possible, and to find the other rebels in my neck of the woods. Amazing how many of us there are. Repressive theocracy breeds quiet but passionate rebels.

I do believe we have a great set of rights and obligations set forth in the Constitution and the Bill of Rights. But we have a bunch of stupid state and federal laws and statutes that are unconstitutional. Drug laws, for instance. We tolerate a homegrown terrorist organization that escalates from intimidation to murders in the name of protecting a zygote. Potential life trumps the living person. The right-to-lifers are always pro death penalty. And they always claim to be driven by some religious zeal. I've known a lot of people who claim to be christian, but I have known very few who truly lived up to the dogma. Judge not, is a big one. Covetousness is another difficult test for christians. Love thy (strange) neighbor is another problem. There is something in there about the poor, the disabled, the elderly too, I'm sure.

I've done my time searching for a religious fit for myself. Couldn't be done. It started when I was in my teens and ended in my fifties. The best I did was find a congregation and a pastor who spoke to me in many ways that satisfied something in my heart that was mostly about having a sense of community. They were welcoming and kind, generous and accepting. And the pastor was smart. He was an intellectual, an academician, an author, an activist. And yet, a kind and modest man. He walked the walk. It was a predominantly black Baptist church.

The first draw for me was walking past the open front doors on a warm spring day and hearing the sound of a great band and a swinging gospel choir. Hot damn. I'm coming back. Great entertainment for a $5 contribution every sunday at a civilized hour? You can't beat that. Women wearing nice dresses and hats. Oh yes, I could do that. I loved it. It had nothing at all to do with faith or belief. It had everything to do with the collective spirit of those people, the personality of the preacher, the humor in his sermons, the great music, all that kept me coming back. And then I hooked up with one of the nicer looking older bachelors of the congregation.

We became a couple. And then it seemed as if I had an obligation to believe in the dogma. I wrestled with that. The man was a catch. He looked like Morgan Freeman. He was a retired homicide detective. First black homicide detective in Salt Lake. But even retired, he was still a man who represented The Law. He followed The Rules. (Didn't mean I had to) He believed The Dogma. And in order to keep going out with this sexy man I eventually had to choose or admit how damn shallow was my faith in anything or anyone.

I did get baptized. But in my interview with the pastor, I said I believed anything was possible and that no religion was THE ONE TRUE religion. He let me skate on that, but talked obliquely about the foolish belief that Christ is not the One True Savior in next Sunday's sermon. Even so, even with the disclaimer, they dunked me. It didn't change a thing in me. I was still the same old skeptic. Still the same old pot smoking sinner. Still the passionate supporter of a woman's right to chose, an opponent of the death penalty, the same woman who just couldn't learn to honor her father and her mother.

When the bachelor asked me to marry him and move to Mesquite, Nevada, I bailed. No more church either. It felt like a package deal.

One of the things I learned during that period of time was that white men, even those not in a uniform of authority, find the sight of a black man with a white woman an affront to the laws of nature. And some white men are so insecure that a badge gives them license to commit all kinds of legal and moral offenses just because they wear a badge and carry a gun. So respect for authority does not come easily to those of us who have been abused by authority young and then observed authority break laws every day of our lives. But I'd love to live in a culture where we were all treated equally under the law, and our differences respected. Until then, I'll keep my skepticism and do my smoking at home with the windows closed. And I've given up dating.

I do think it's nice that our first black president has invited his friend the academic, and the cop who arrested this small, elderly black man on the porch of his own home to the White House for a beer. And I'm glad he called the behavior of the policeman who arrested his friend "stupid." It has started the conversation going again. Racism is still an issue in this country. Racial profiling is tolerated in every police force in the country. We are a nation of bigots even if unconscious of that bigotry. You probably learned it early at home or in church. Just saying. I guess if you respect the authority that taught you your bigotry and claimed it was your birthright, you just fall in line. And if the Jesus in your picture books is blond and blue eyed, I guess you think he's yours alone.

But if you know that authority isn't right about everything, then you just might turn into a questioning rebel.

It Don't Mean A Thing If It Ain't Got That Swing

"Doo wah doo wah doo wah doo wah doo wah. Makes no difference if it's cool or hot." This song is featured in chapter 20 of the novel, Maggy. It's called "Dancing at the Club."

Saturday, July 25, 2009

One More Friend Hits The Wall

One of my informally adopted daughters is terribly ill. In the past week she has been admitted twice to the emergency room at the University Hospital. Neither time did she tell me that she was in trouble. Now that she's home and starting to recover, she called to let me know that there was a problem, but now it's fixed. For the time being. She has Cushing's Disease. It isn't really curable, but it can be treated. Unfortunately, the treatments are drastic and require constant monitoring. She's had so many serious surgeries, that scar tissue is now a problem. Stress is a factor in Cushing's and she has been going through a difficult divorce. I am sick with grief and worry. But there is nothing I can do. She won't let me do anything. I feel so helpless and useless.

Z is having problems with her daughter in law. Z's youngest son, his "wife" and her toddler and their infant had moved into Z's house to take care of her. But the daughter in law does not help. Yesterday when I called Z, she was doing laundry and cleaning the refrigerator. I asked her why she was out of bed and doing these things. She said she couldn't take the mess any longer. The fridge was stinking and she was in need of clean clothes. She also said the kitchen floor was so dirty she couldn't stand it. Today she tells me they are moving out soon. That was not the commitment they made with her. This is a drastic change of plans.

I feel useless and furious, and terribly scared. There are so few people I'm really close to, and these are two of the most important to me. I can't go to Z's house and muscle my way in to clean and do laundry. So to deal with my fear and worry I'll clean my own house.

Friday, July 24, 2009

Saturday Song

The Novel Is Back Online

There are forty nine chapters in the novel Maggy. I now have thirty eight posted and will finish the rest of them today. I'm not sure why it's taken so long to repost them. Probably has something to do with the disappointment that Amazon didn't pick it as one of the finalist is their Breakthrough Novel Contest. I really need to toughen up when it comes to rejection. Otherwise I'll stop trying. I believe that this book is well written and worth reading. I know some of you have read it and left comments. And it's your comments that lead me to the conclusion that this book has several universal themes running through it. Most pointedly, it's the difficult relationship between mother and daughter that seems to strike a chord with a lot of you.

If you are new to my blog since I took it off the site, last January, the book will be new to you. I hope you will read it and leave comments. They are the bread crumbs that lead a writer to the final edit. It was the comments from MrMacrum, who left such sensitive and honest notes on every chapter he read, that made him the prefect editor for me. He was kind enough to do a very close edit on the first three chapters, which made up the bulk of my submission package. Thank you again, MrMacrum. I used every suggestion you made.

So now I will take the time to post the last twelve chapters. Sorry for my absence at your place lately. I have been pulled away from the blog this summer. At some point I will return to it as if it were my full time job. And then you'll wish I'd find something to do besides bug you with impertinent, cheeky comments.

Thursday, July 23, 2009

Thursday Matinee Movie

Public Enemies is the movies today. I'm amazed how long it's been since Nick and I've had a Matinee Movie date. Z's situation has so completely taken over the time I would have spent with anyone else. So Nick and I missed my birthday. We were going to do lunch and a movie. There are several new restaurants in my neighborhood. A couple of them are getting rave reviews. Soon that will be on the agenda. But today it's just a matinee. The thing I'm looking forward to more than anything is conversation with Nick and the air conditioned theater. It's really hot in Salt Lake. It's going to get up to 100 today. On my porch it'll be 125.

Wednesday, July 22, 2009

Let This Be A Warning To You

My friend Z is doing amazingly well, considering. She is complying with her oncologists. But now that the radiation is burning her throat, and the chemo is making her queazy, the doctors are prescribing drugs that will alleaviate these problems. But Z doesn't believe in Western medicine and when it came time to sign up for Medicare she assumed that she would never get sick enough to ever need the part A, B and D of Medicare coverage. Now she needs them all and the enrollment period won't come around again until November. It is part D that would have paid for her drugs. It is part D that would make a drug that costs $150 at most $3.50. I audibly gasped when she told me that she didn't have part D. I couldn't help myself. I said, "But you need part D." She was furious and shouted, "Don't tell me what I should have done. That doesn't help me now." And of course she's right. Now that it's too late, it doesn't help to tell her what she should have done.

If you're healthy, you never think you're going to need insurance and prescription drug coverage. And if you're young you never think your going to get ill. But everyone needs insurance. That is why the healthcare debate is so terribly important. We need a public option. Please call your Congressional Representative and lobby for a public option for healthcare. We need you healthy. We need you paying attention to the issues that will make a difference in all our lives.

We are not allowed to drive a car without insurance and we don't think twice about that. But we are so careless when it comes to insurance for our own health. It should be mandatory that everyone is covered with health insurance.

Tuesday, July 21, 2009

Procrastination

I've quit procrastinating. Yes, you heard that right. I didn't put off quitting procrastinating until tomorrow though I could have. Technically I did finish on time if you live in the mountain time zone like I do. I actually posted the first three chapters of the novel, Maggy. The rest of the chapters are ready to go up, but I'll put them up later.

I Cut My Hair All By Myself


Yesterday when I got home from picking Z up, I wet my head and cut my hair. It took fifteen minutes to go from shoulder length to short. It's going to take a little snip here and snip there, but for the most part I'm happy with it, and I saved myself at least $40.00. So now all I have to do in the morning (11:00 AM for me) is wet my head and finger comb it.

I have to grocery shop and do laundry today. Then I swear I'm going to edit two chapters of the novel and start posting it again. I know you've heard that before, but this time I mean it.

Monday, July 20, 2009

Healing in the Time of Z

Z is chipper and upbeat. I picked her up at 12:30 at Huntsman. She'd just had two hours of chemo and she's chipper. She likes my Pucci top and asked me to take her shopping soon. I'm almost dumb struck. This is something I would never have predicted, but she has nothing but good things to say about her new internist, and the lovely people who are taking her through this Western medicine miracle. Maybe it's all the good vibes you send her way, but whatever it is, it's working.

She is wanting outings. She is looking ahead, toward winter and travel. She talks about the lovely view from the Huntsman rotunda, the cool breeze coming down the canyon on another hot day. I savor every second I spend with her, but today was one of the best. She wanted to stop at a little Mexican drive-through and pick up a cheese enchilada, a side of beans, and a flan. Wow! I got take-out too. Yes, I love cheap Mexican food. I take her home to eat her lunch and off I go to run some errands. Everything is nice today. It's all good. Is this me talking?

Sunday, July 19, 2009

This Always Reminds Me of My First Love, My Last Love

He used to play this as an exercise, a practice piece, and it was always gorgeous. Watch the fingering. It's quite erotic to me.

Sundays were often spent doing nothing but practice for Tom and slow domesticity for me.
I think he has a new love. I hope so. He's happiest with an audience of one.

Saturday, July 18, 2009

Yes, You Heard It Here; It's All About Me

Two of my very close girlfriends are dying. One fast, one slow. Yes, I know, we're all dying slowly, but MS isn't the usual slow kind of death the rest of us are experiencing, it's a slow agonizing loss of everything but the clear thinking functioning brain that notices all the rest of the profound loss that's taking place quite rapidly. Her diagnosis was the first blow. I was able to help her in small ways in the beginning, since I had gone through the disability hoops and knew the ropes. Trust me, it gave me no pleasure to be this particular kind of help to her. Yes, I'm glad there was something I could do for her, but her diagnosis was an agonizing death sentence with a long time locked up and waiting. It wasn't long after this diagnosis, her loss of the ability to work anymore, that her only child, her son, was stabbed to death in a downtown park. He was going to be her rock, her caregiver. He and his lovely wife were going to make her final long demise less painful. His death was not the first nail in her coffin, it was close to a stake in her heart. I don't know how she survived that loss, but she has always been one very tough cookie.

She was Salt Lake's own version of "The Devil Wears Prada." She was the fashion coordinator at Nordstrom when we were Salt Lake's version of the Fashion Police. It was her great taste and exacting standards that scared us all half to death and kept us always on our toes. I was her assistant. It was her direction and fabulous taste the determined my choices. She did the decision making on all the really big fashion shows. She hired temporary help to pull the clothes and accessories for those gigantic shows and extra help with the fittings. And then there were the terrifying rehearsals at 5 AM. And because of her, my modeling career took off in my late forties and into my mid fifties. Who would have ever imagined that there would be a market for old models? But it was a time of enormous change in the fashion industry. We hired plus-sized models, we hired petite models. It had never been done before. We were trail blazers, pioneers in the fashion industry. And she was our leader. This probably bores you silly if you aren't a fashionista, but it was our lives. Even if what you do is essentially silly, if you do it really well, it can be quite spectacular.

I called her today. It's been a couple of years since her diagnosis of MS, maybe more. And when she got the diagnosis, she'd been ill for a long time. So how long does it take for MS to kill you? When we talked today, she said she was no longer able to walk without a walker. She takes handfuls of drugs to keep her from having spasms and cramping and uncontrolled twitching. Not fun drugs. Not like the good old days, when we partied at the New Yorker. Not like the time she visited Tom and me in Santa Barbara. We were the only two women working at Nordstrom who didn't hide our cigarette smoking. We wore red lipstick and ran in high heels as effortlessly as breathing. Now breathing isn't effortless for her and it has nothing at all to do with smoking.

Z on the other hand never was a cigarette smoker. She didn't care about fashion. She lived for her children and lived the clean and very wholesome life of a woman with a real spiritual belief. I can hear you thinking "What did she ever see in you?" I realize I have made light of her need to believe in homeopathy and Chinese Herbs and acupuncture and a very pure vegetarianism to treat her symptoms for years. But I was desperate for her to fight fiercely to live. So now she's finally given in and like a very good patient is going for her radiation treatments and chemo therapy. But her odds are not good. If I had her cancer, I'd be putting notes on the very good jewelry and nice pieces of furniture so there'd be no bickering about who gets what when I'm gone.

The bottom line for me is that I never was a girl to surround myself with lots of close friends. I could hardly stand anybody. But I grew to love these two women who seem to have nothing in common. Without them I'll be lost. I cannot even imagine a life without them. We had all taken it for granted that I'd die first. Be careful what you take for granted. You may not get what you expected. But what you do get will test you. It will hurt so much you'll think it just might kill you. But it won't. That's the problem. You might end up the last one standing.

Man Walks On Moon (Deadwood Style)

Oh, if only the story had been reported this way: Deadwood Style.

Thanks Sitenoise, thanks. I need all the laughs I can get.

Friday, July 17, 2009

Simple Gifts in Honor Of Walter Cronkite

Walter Cronkite Dies Today

This may be the last serious broadcast journalist. It was at the end of his on air career that networks started demanding that the news had to make money. No longer would we get the news we needed to know, now we would get the news we wanted to know.

It's Too Damn Hot

An hour ago it was 123 degrees in the sun on my porch. The temperature in the house is holding at 83, but to me that's starting to feel hot. There isn't a bit of moisture in the air. So the swamp-cooler is doing it's job, but barely. I've just resorted to turning on the outside water, waiting the couple of minutes it takes to flush out the hot water from the hose and soaking the swamp-cooler pads to get a little extra cool moist air in the house. But damn, it's hot. 99 in the shade at 4 PM. It will be this way for weeks at least. Could be this way a month or more. I guess this is payback for that long, cool, wet Spring.

But now, it's just to damn hot for anything.

Morning's Not For Me

I wake up like a person who needs to know how to do everything again for the first time. Like walk. I stagger and weave in the morning as I make my way to the crapper. My brain doesn't work and usually actually hurts. My eyes won't focus. I've tried to write a brief answer to a comment on the blog before I've been up at least an hour and my fingers just do not work. Like little clubs with no memory of the keyboard. I hate mornings. I always have.

My mother claimed I was born a night person. She was always a morning person, so this was just one more way in which I was defective. But her assertion that fresh out of the womb I wanted to sleep in and stay up all night rings very true. I've had jobs that required 5 AM call times. The best thing for me to do was sleep most of the prior day, then just wake up in the late evening and then my call time would be at a reasonable hour, still part of the night.

I was an assistant to the fashion coordinator at Nordstrom in Salt Lake and Nordstrom likes to have very early morning meetings for management. I can remember driving down Emigration canyon road at 6 AM and not gaining consciousness until pulling into the parking garage. I call this sleep driving. I was completely on autopilot during all those early morning drives down that narrow, steep, winding canyon road. I know I drove the road asleep and speeding.

Now some jackass is calling me every morning at 8:01. This would be great if I really needed a wake-up call, but it's torture since I stayed up till 3 Am the night before. That is my normal bedtime. I know it's wrong to the rest of you that I have the luxury of living my life according to my own biorhythms, but that's the only good thing about being disabled--that and Medicare coverage.

So today I plan to make some phone calls. I will reregister with the Do Not Call Registry. That won't stop this asshole, but it's a start. I'm getting too many solicitations everyday and it isn't all that much fun fucking with the poor schmucks who need that work. The Diabetes Association has stopped calling me, but the person who is calling me is, I'm pretty sure the person who first called me for the Diabetes Association and got the angry bear that is me in the morning and decided it was fun to wake me up. Now I'll start disconnecting my phone at night.